Marguerite was having multiple, life-threatening seizures a day and had life-saving brain surgery in March 2018. The surgery has affected her ability to use one side of her body. After six months in rehabilitation, Marguerite was able to return home with an NDIS plan. The NDIS has allowed Lindie to engage a support worker and therapists for Marguerite and has provided necessary equipment. This support has also relieved the burden and worry from Lindie so she can live her own life to the full.
Lindie (Marguerite's mum): One afternoon sitting with her and I just hold her hand, she turned to me and she said to me in Afrikaans Ek is lief vir jou (I love you) Mama and that was just wonderful, that the language is still there and she's still there.
Overlay: Marguerite was having multiple, life-threatening seizures a day and had life-saving brain surgery in March 2018. This has affected her ability to use one side of her body.
Lindie: Marguerite had surgery nine months ago to try and achieve seizure control and it was successful, she's not had a seizure since then. Nine months and one day ago I couldn't even imagine that could be the outcome.
Overlay: Marguerite spent six months in rehab at Sydney's Children's Hospital Randwick and was able to go home with an NDIS plan.
Lindie: Marguerite is a really strong little girl, very resilient nd from the very start as a baby she's just taken everything in her stride.
Sky Fosbrooke (Marguerite's physiotherapist): She's always been really positive and sort of brings a lot of joy and light to the sessions. We are seeing Marguerite here for quite a long time so there was lots of games that we used to do she enjoyed out there in the courtyard and gardening or playing with bubbles, the quoits, basketball, soccer. There was endless activities that Marguerite was always really engaged and enjoyed doing.
The great thing with NDIS is it gives Lindie and Marguerite the option to find therapists that can work with them in the way that they need back home.
Lindie: We'd already made arrangements before leaving the hospital and the team here helped us to set up relationships with local therapists. The NDIS has allowed us to engage a support worker for Marguerite, care workers and equipment and the therapists and it has taken so much pressure of us and the incredible fear you lived with every day that she would get seriously injured or not be there anymore.
I needed to look at who is Marguerite and what does she want to achieve in her life and how we can make that happen. Now I can see a very bright future for her. I just needed to adjust my expectations of what that might be. It was wonderful to know that we had the NDIS plan in place. We can be just a normal family.
Overlay: With thanks to Marguerite, Lindie and the team at Sydney Children's Hospital, Randwick.
This video has been produced by NSW Health with funding support by the NDIS through the Information, Linkages and Capacity Building (ILC) - ILC National Readiness Grants.